I’m living with AML

You may feel many emotions heading home after AML treatment. However, remember that even if you are going home, you will still be under the care of your haematology team.

You are not alone

No matter how it might feel, please know that you are not alone. There are other people out there that have had, or are having, a similar experience.1 Reaching out to others in the same situation can be helpful. Ask your nurse for information on support groups local to you.

Will I be seeing my doctor?

There are many reasons why your haematology team will still routinely see you, such as:


You will likely have regular blood tests and may need periodic bone marrow tests1 to check your blood count and monitor your AML.2


You could need additional treatments, such as blood and platelet transfusions.


Your doctor will schedule out-patient appointments to monitor your progress after treatment.

If you have any concerns, remember that you can get in touch with your nurses. They understand that this can be a difficult transition, and they are there to support you.

Many hospitals also have a 24 hour hotline - remember to use it. If you have any symptoms that concern you, do not wait for your next appointment, contact your hospital immediately.

Five tips to transition from hospital to home


Try sticking to regular times to wake in the morning and sleep at night.


You may experience varying energy levels,3 so make sure you take a break when needed.


Attempt to eat three healthy, nutritious and well-balanced meals a day, to provide your body the adequate calories it needs.4,5


Try incorporating some gentle exercise into your daily routine. This will help with fatigue and may even decrease anxiety levels.5,6 Why not try some exercises to get you moving.


When you are ready, start socialising with friends and family. Connecting with others can give happiness levels a significant boost.5,7

Find out more about

My loved one has AML

Information and emotional support for those caring for someone with AML.

Life with AML

Living with Acute Myeloid Leukaemia, or AML, can often be an adjustment.


1. Leukaemia Care. Living Well with Acute Myeloid Leukaemia. https://media.leukaemiacare.org.uk/wp-content/uploads/Living-Well-with-Acute-Myeloid-Leukaemia-AML-Web-Version.pdf [Last accessed: July 2023].

2. Cancer Research UK. Support at Home for you and your family. https://www.cancerresearchuk.org/about-cancer/acute-myeloid-leukaemia-aml/living-with/support-home-for-you-your-family [Last accessed: July 2023]

3. Blood Cancer UK. Blood Cancer and Fatigue. https://bloodcancer.org.uk/support-for-you/living-well/fatigue/ [Last accessed: July 2023]

4. Arends J, Bachmann P, Baracos V, et al. ESPEN guidelines on nutrition in cancer patients. Clin Nutr 2017; 36: 11-48. 20160806.

5. Macmillan Cancer Support. After Cancer Treatment: A guide for professionals. https://www.macmillan.org.uk/documents/aboutus/health_professionals/professionals-guide-after-cancer-treatment.pdf [Last accessed: July 2023]

6. Schuch FB and Stubbs B. The Role of Exercise in Preventing and Treating Depression. Curr Sports Med Rep 2019; 18: 299-304.

7. Diener E and Seligman ME. Very happy people. Psychol Sci 2002; 13: 81-84.

Terminology Explained

Learn and understand the different terminology associated with Acute Myeloid Leukaemia, or AML, in our Terminology Explained guide.

MAT-MY-NON-2023-00032 | Dec 2023